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Making the right connections since 1988

Genetic Alliance Australia is a peak umbrella group for rare genetic conditions/diseases, so rare they do not have their own support group.

Genetic Alliance Staff

Jan Mumford

Executive Director

Jan’s work with genetics and families is from the hope it offers as well as the challenges this new information gives. Jan has a varied background in large telecommunications organisations and small business WHS consultancy. She has recently completed a BSocSc (Sociology) to round out the background of her work. Her work with research groups provides a community perspective, promoting the health and support needs of those affected. At the state and federal levels, Jan has worked with peak advocacy groups for improved services and provided feedback on government policy and procedures. Jan’s experience and background strengthens Genetic Alliance support for families at all stages of a diagnosis as well as a community voice at state and federal levels.

Victoria Warn

Project Manager & Associate Genetic Counsellor

Victoria is an Associate Genetic Counsellor with over 10 years’ experience in the field of Medical Science. Victoria has been involved with various support organisations and has a strong interest in rare genetic conditions and prenatal genetics and genomics. Victoria has had 3 years’ experience as an Event Producer and Relationship Manager.

B Med Sci (UTS), MGC (UTS)

Genetic Alliance Board Members

Wendy Bruce

Executive Officer of Fragile X Association

Wendy is Executive Officer of Fragile X Association, a member-based not-for-profit organisation supporting individuals with Fragile X-associated conditions and their families. Wendy has worked with community-based support groups for a number of years, and in her early career worked with professional services firms as an information manager.

Wendy has a B Soc Sci (Lib).

Dr Jane Fleming

Lecturer & Associate Genetic Counsellor

Jane is a research manager at the Royal North Shore Hospital Department of Clinical Genetics and an associate genetic counsellor. She has an interest in inherited genetic conditions and has previous research experience studying deafness genes and gene therapy for the treatment of a neuro-degenerative condition. Jane’s research interests include personal genome testing, inherited eye conditions, prenatal testing and genetic counselling.

Kate Dunlop

Director, Centre for Genetics Education

Kate is the Director of the Centre for Genetics Education NSW Health. She has worked in education in the health setting for over 25 years and has wide experience in program management, resource development and educating health professionals as well as students, patients and the community generally. Her particular interests include familial cancer, public health genetics including family health history, screening and evaluation, and communication skills training. Kate has a BAppSc(Nurs), DipEd(Adult) and a MPH(USYD), and is a Clinical Lecturer, Sydney Medical School- Northern, University of Sydney.

Lizzy Harnett

Executive Director AWCH

Lizzy is the Executive Director for the Association for the Wellbeing of Children in Healthcare (AWCH). AWCH is a national NFP organisation of consumers and health professionals advocating for the wellbeing of children, young people and their families in healthcare.
Lizzy has a B.App.Sc (Physiotherapy) and has worked as a children’s physiotherapist in the acute, community and school based settings. In 2001, Lizzy moved from Director of Physiotherapy into health management and established the Clinical Governance Unit (CGU) at The Children’s Hospital at Westmead (CHW) where she continued as Director of the CGU until late 2013. Lizzy has a passion for partnering with consumers in improving healthcare and is on a number of state and national committees focussing on the wellbeing of children and young people.

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