About Genetic Alliance Australia

Genetic Alliance Australia is a peak umbrella group for rare genetic conditions/diseases, so rare they do not have their own support group.

Genetic Alliance Australia (GA) endeavours to facilitate contact between families/individuals affected by the same, or similar condition, and/or provide information about relevant support groups both nationally and internationally. GA also deals with enquiries about services and facilitates ongoing support for individuals, families, health professionals and other interested groups. GA has an extensive rare disease database representing 1400 conditions and over 3500 individuals and families affected by genetic conditions.

Genetic Alliance is a member of Clinical Genetics Executive Committee, NSW Newborn Screening Committee, NSW Register of Congenital Conditions, Consumer Health Forum, EURORDIS, Health Consumers NSW and the International Alliance of Patients Organisations (IAPO).

PROFESSIONAL ADVISORY COMMITTEE
■ Assoc Professor K. Barlow-Stewart PhD, BSc, FHGSA (Genetic Counselling) (Chairperson)
■ Dr Mimi Berman BM BS, FRACP, BSc Hons, PhD Medicine, Clinical Geneticist (HGSA)
â–  Prof. David Sillence AM, MB BS, MD (Melb), FRACP, FAFRM, FRCPA, FFSci (RCPA),FAFPHM
â–  Prof. Ron Trent PhD, BSc (Med); MB BS (Syd), DPhil (Oxon), FRACP, FRCPA.
â–  Prof Bridget Wilcken MB ChB, MD (Syd) FRACP,FRCPA

Genetic Alliance Australia provides:

■ Resources relating to education, respite care, medical services and other helpful organisations
■ Information  seminars
■ Local and regional contacts
■ Annual Genetic Awareness Week
■ Face to Face Counselling
■ Genetic Seminars
â–  Rural Outreach Program - Filling the Void
■ Networking and social events for families and individuals 

Call on +61 2 9295 8359 for more information.