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Genetic Alliance Australia produces regulars newsletters which cover a wide spectrum of genetic disorders, gives our readers insights into personal stories and features relevant other information relating to genetics and genetic research.

We have posted some of our newsletters below. However, if you would like to received our newsletters on a regular basis, please consider taking out a membership. Not only does this membership fee help support the important work we do, it also gives you unlimited and regular access to our very latest newsletters.

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Our Newsletters

Date Issue Features Download
Apr 1989 1 Drawing a family health tree, NSW Genetic Services Download PDF
Nov 1989 2 Antenatal diagnosis, Victorian Genetic Services Download PDF
Mar 1990 3 Congenital Adrenal Hyperplasia, Biochem Genetics Download PDF
Jun 1990 4 Turner syndrome, Achondroplasia Download PDF
Mar 1991 7 Tuberous Sclerosis, Noonan syndrome Download PDF
Mar 1992 8 Marfan syndrome, Rett syndrome Download PDF
Jun 1992 9 Ectodermal Dysplasia, Sanfilippo disease Download PDF
Oct 1993 10 Huntington’s disease Download PDF
Jan 1994 11 Fabry disease Download PDF
May 1994 12 Angelman syndrome Download PDF
Aug 1994 13 Leigh disease Download PDF
Oct 1994 14 Klinefelter syndrome Download PDF
Dec 1994 15 Rare Chromosomal disorders Download PDF
Feb 1995 16 Gaucher disease/Lysosomal Storage Disorders Download PDF
Mar 1995 17 Sotos syndrome Download PDF
Jun 1995 18 Psychiatry & Genetics Download PDF
Aug 1995 19 Haemochromatosis/Grief Seminar Download PDF
Oct 1995 20 Velo-Cardio-Facial syndrome Download PDF
Dec 1995 21 Williams syndrome Download PDF
Feb 1996 22 Education – positives and negatives – how to reach their full potential once labelled with a genetic condition. Download PDF
Apr 1996 23 List of conditions represented by AGSA Download PDF
Jun 1996 24 Androgen Insensitivity syndrome (AIS), Fragile X syndrome Download PDF
Aug 1996 25 Glaucoma History: New research findings Download PDF
Oct 1996 26 Familial Adenomatous Polyposis Coli (FAP) Download PDF
Dec 1996 27 Marfan syndrome Download PDF
Feb 1997 28 Ehlers Danlos syndrome Download PDF
Apr 1997 29 Alpha-1-Antitrypsin Deficiency Research Program Download PDF
Jun 1997 30 Hereditary Hemorrhagic Telangiectasia (HHT) Download PDF
Aug 1997 31 Double Y syndrome Download PDF
Oct 1997 32 Family focus when a child has a disability by Dr EnverBajraszewski Download PDF
Dec 1997 33 Beckwith-Wiedemann syndrome Download PDF
Feb 1998 34 West syndrome Download PDF
Apr 1998 35 Genetic Counsellor & Why am I a genetic counsellor? By Lucille Stace Download PDF
Jun 1998 36 18q deletion, The Chromosome 18 Registry & Research Society Download PDF
Aug 1998 37 Pompe’s disease Download PDF
Oct 1998 38 Mitochondrial disease – a family story Download PDF
Dec 1998 39 Smith Magenis syndrome Download PDF
Feb 1999 40 Survey results – needs and experiences following the diagnosis of a genetic disorder Download PDF
Apr 1999 41 Siblings within the Family Unit where there is a child with a developmental disability Download PDF
Jun 1999 42 Shwachman syndrome Download PDF
Aug 1999 43 The role of genetic support groups – when the family needs help Download PDF
Oct 1999 44 Cri du Chat syndrome Download PDF
Dec 1999 45 The Human Genome Project Download PDF
Feb 2000 46 PHHI Coeliac disease Download PDF
Apr 2000 47 Genetic Disorders Awareness Week Download PDF
Aug 2000 48 Genetics and the Law - Seminar Download PDF
Oct 2000 49 Coffin Siris syndrome Download PDF
Dec 2000 50 Phenylketonuria (PKU) Download PDF
Feb 2001 51 Canavan disease Download PDF
Apr 2001 52 Lowe syndrome Download PDF
Jun 2001 53 Diagnosis of Rare Disorders Download PDF
Aug 2001 54 Rare Chromosomes disorders Download PDF
Oct 2001 55 Triple X syndrome Download PDF
Dec 2001 56 Protection of Human Genetic Information Download PDF
Feb 2002 57 Pallister-Hall syndrome Download PDF
Apr 2002 58 Lupus, Cutis Laxa Download PDF
Jun 2002 59 IncontinentiaPigmenti Download PDF
Aug 2002 60 Agenesus of the Corpus Callosum Download PDF
Oct 2002 61 Polycystic Kidney Disease Download PDF
Dec 2002 62 Trichiothiodystrophy (Tay syndrome) Download PDF
Feb 2003 63 MethylmalonicAcidemia Download PDF
Apr 2003 64/65 XerodermaPigmentosa Download PDF
Aug 2003 66 VACTERL syndrome Download PDF
Jan 1970 67/68 Hypoplastic Left Heart syndrome Download PDF
Apr 2004 69 Gaucher Disease Download PDF
Aug 2004 70 NZORD Conference Download PDF
Dec 2004 71 Immunodeficiency Diseases Download PDF
Mar 2005 72 Batten Disease Download PDF
Jun 2005 73 International Genetic Alliance Download PDF
Sep 2005 74 Hereditary Spastic Paraparesis Download PDF
Dec 2005 75 Retinitis Pigmentosa Download PDF
Mar 2006 76 Family Stories: Travelling Overseas - Pyruvate Dehydrogenase Deficiency Download PDF
Jul 2006 77 Undiagnosed Children Download PDF
Oct 2006 78 Kabuki syndrome Download PDF
Feb 2007 79 Progeria; Essential Tremor Download PDF
May 2007 80 Tuberous Sclerosis Download PDF
Oct 2007 81 Where are we now with Human Genetics? Download PDF
Dec 2007 82 Emery-Dreifuss Muscular Dystrophy Download PDF
Apr 2008 83 Genetic Alliance Biobank Download PDF
Jul 2008 84 Saethre-Chotzen Syndrome (ACS) Download PDF
Dec 2008 85 Sotos syndrome Download PDF
Mar 2009 86 Diastrophic Dysplasia Download PDF
Jun 2009 87 Companion Card and Rent Assistance Download PDF
Oct 2009 88 Cultural Issues in Paediatric Health Download PDF
Dec 2009 89 Cyclical Neutropenia Download PDF
Mar 2010 90 Smith Magenis syndrome Download PDF
Jun 2010 91 Gorlin syndrome Download PDF
Oct 2010 92 Alport syndrome Download PDF
Feb 2011 93 MELAS syndrome Download PDF
Jul 2011 94 Hereditary Hemorrhagic Telangiectasia Download PDF
Nov 2011 95 Corticobasal Degeneration Download PDF
Mar 2012 96 Hereditary Spastic Paraplegia Download PDF
Aug 2012 97 Charge Syndrome Download PDF
Nov 2012 98 Sotos Syndrome Download PDF
Mar 2013 99 Stiff Persons Syndrome/Funicular Myeosis Download PDF
Aug 2013 100 AGSA 100th Issue Special Download PDF
Dec 2013 101 Apert Syndrome Download PDF

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