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About Genetic Alliance Australia

Making the right connections since 1988

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  • About Genetic Alliance Australia

Genetic Alliance Australia is a peak umbrella group for rare genetic conditions/diseases, so rare they do not have their own support group.

Genetic Alliance Australia (GA) endeavours to facilitate contact between families/individuals affected by the same, or similar condition, and/or provide information about relevant support groups both nationally and internationally. GA also deals with enquiries about services and facilitates ongoing support for individuals, families, health professionals and other interested groups. GA has an extensive rare disease database representing 1400 conditions and over 3500 individuals and families affected by genetic and rare conditions.

Genetic Alliance is a member of the Human Genetics Advisory Committee, NSW Genetics Advisory Committee, NSW Newborn Screening Committee, NSW Register of Congenital Conditions, Consumer Health Forum, EURORDIS, FONGA, Health Consumers NSW, International Alliance of Patients Organisations (IAPO), the International Genetic Alliance (IGA), PGD Assistance Program and the World Organisation for the Prevention of Birth Defects (WAO).

■ Assoc Professor K. Barlow-Stewart PhD, BSc, FHGSA (Genetic Counselling) (Chairperson)
■ Dr Mimi Berman BM BS, FRACP, BSc Hons, PhD Medicine, Clinical Geneticist (HGSA)
■ Prof. David Sillence AM, MB BS, MD (Melb), FRACP, FAFRM, FRCPA, FFSci (RCPA),FAFPHM
■ Prof. Ron Trent PhD, BSc (Med); MB BS (Syd), DPhil (Oxon), FRACP, FRCPA.
■ Prof Bridget Wilcken MB ChB, MD (Syd) FRACP,FRCPA

Genetic Alliance Australia provides:

■ Resources relating to education, respite care, medical services and other helpful organisations
■ Information seminars
■ Local and regional contacts
■ Annual Genetic Awareness Week
■ Telegroup Counselling
■ Face to Face Counselling
■ Sibling Workshops
■ Genetic Seminars
■ Rural Outreach Program - Filling the Void
■ Annual BRCA1/2 Information Day
■ Networking and social events for families and individuals 

Call on +61 2 9295 8359 for more information.

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Our mission statement

To facilitate support for those affected directly or indirectly by genetic conditions throughout Australasia.

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ABN  83 594 113 193  |  ACN 168918625  |   Registered Charity CFN  15481

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C/- Garvan Institute of Medical Research
Level 6, 384 Victoria Street
Darlinghurst ,  NSW   2010


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