RARE-X

Research, registries & clinical trials
RARE-X is an international research program from Global Genes that helps people and caregivers contribute structured health information for rare disease research. Its shared data platform supports natural-history studies and the development of treatments across rare conditions.
Illustration of three people beneath a heart, representing community and support.
International
rare diseases broadly; RARE-X; Rare X; Global Genes; rare disease data platform; natural history study; patient-reported data; research participation