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Rare Voices Australia

Rare Condition Umbrella Organisations
Australia’s national peak body for people living with rare disease. Rare Voices Australia leads national policy, advocacy, education and system improvement, and connects people and families with rare-disease information and resources.
Illustration of three people beneath a heart, representing community and support.
  • Where it is available
Australia-wide
  • Website
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  • Conditions supported
rare diseases broadly, including rare disease disability; RVA; RARE Portal; Rare Disease Disability Virtual Kitchen Table; disability peer support; rare disease disability; RARE Helpline; Rare Disease Disability Toolkit; rare disease and disability; NDIS and rare disease; disability self-advocacy