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Rare Diseases NSW

Research, registries & clinical trials
A collaboration between UNSW Sydney and Sydney Children’s Hospitals Network that brings clinical care, research, education and community leadership together. It works with people with lived experience and sector partners to reduce diagnostic delays, improve coordinated care and accelerate research and access to treatments.
Illustration of three people beneath a heart, representing community and support.
  • Where it is available
NSW
  • Website
Visit organisation website →
  • Conditions supported
rare and undiagnosed conditions broadly; rare disease; undiagnosed disease; Rare Diseases NSW; NSW rare disease research; coordinated rare disease care