Rare Diseases NSW: Rare Power

Research, registries & clinical trials
Find opportunities to help shape rare disease research and service design in New South Wales. People with lived experience and families can express interest in projects spanning diagnosis, coordinated care, peer support, health literacy and fair access.
Illustration of three people beneath a heart, representing community and support.
NSW
lived-experience participation in rare disease research and service design; Rare Power; Rare Diseases NSW research; lived experience research; Diagnosis4All; rare disease passport