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Raising Children Network: raising children with rare diseases

Disability and NDIS, Family, carer and sibling support
Practical, evidence-based guidance for families raising a child with a rare disease or condition. It covers supporting development, early intervention, working with professionals, financial supports, family wellbeing, relationships and finding rare-disease information and peer support.
Illustration of three people beneath a heart, representing community and support.
  • Where it is available
Australia-wide
  • Website
Visit organisation website →
  • Conditions supported
children and families living with a rare disease or condition; raising a child with a rare disease; rare disease parenting; childhood rare condition; early intervention; family wellbeing; working with health professionals