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Pride in Rare – EveryLife Foundation

LGBTQIA+ support, Rare Condition Umbrella Organisations
An EveryLife Foundation program creating a dedicated space for LGBTQIA+ people affected by rare disease. It offers community groups, resource sharing and advocacy participation, although its policy activity and events are primarily US-focused.
Illustration of three people beneath a heart, representing community and support.
  • Where it is available
International
  • Website
Visit organisation website →
  • Conditions supported
rare diseases broadly among LGBTQIA+ people; EveryLife Foundation; Pride in Rare; queer rare disease; LGBTQ rare disease; LGBTQIA rare disease; rainbow zebra; rare disease advocacy