Global Angelman Syndrome Registry

Research, registries & clinical trials
A global, Australian-led registry for people with Angelman syndrome. Parents, guardians and adults can contribute health and lived-experience information to support natural history research, study design and the development of treatments.
Illustration of three people beneath a heart, representing community and support.
International
Angelman syndrome research; Angelman registry; Global Angelman Syndrome Registry; Angelman research; Angelman syndrome