FSHD Global Research Foundation: Cure FSHD Registry

Research, registries & clinical trials
An Australian patient-led registry for people living with facioscapulohumeral muscular dystrophy. The Cure FSHD app helps participants build a Clinical Trial Passport, contribute research information and prepare for potential studies and trials.
Illustration of three people beneath a heart, representing community and support.
Australia-wide
facioscapulohumeral muscular dystrophy research and trial readiness; FSHD registry; Cure FSHD; facioscapulohumeral muscular dystrophy; Clinical Trial Passport; TREAT-NMD