Developmental and Epileptic Encephalopathy Natural History Study

Research, registries & clinical trials
A natural history study following people with developmental and epileptic encephalopathies across the lifespan. People with a DEE, or a family member, can register online and may be invited to complete questionnaires, samples or assessments.
Illustration of three people beneath a heart, representing community and support.
International
developmental and epileptic encephalopathies; DEE Natural History Study; Genetics of Epilepsy; CLIRINX; genetic epilepsy registry; developmental epileptic encephalopathy; epileptic encephalopathy; DEE