Connective Tissue Disorders Network Australia

Rare Condition Support Organisations
Supports people with heritable connective tissue disorders, including Ehlers-Danlos syndromes, Marfan syndrome, Loeys-Dietz syndrome, hypermobility spectrum disorders and related conditions. It provides advocacy, education and community connection.
Illustration of three people beneath a heart, representing community and support.
Australia-wide
heritable connective tissue disorders, including Ehlers-Danlos syndromes, Marfan syndrome, Loeys-Dietz syndrome, hypermobility spectrum disorders and related conditions