Children’s Tumor Foundation: NF Registry

Research, registries & clinical trials
A global patient-powered registry for people with NF1 and all types of schwannomatosis, including NF2-related schwannomatosis. Adults and parents or guardians can join, complete an annual survey and hear about research and trials.
Illustration of three people beneath a heart, representing community and support.
International
NF1 and all forms of schwannomatosis, including NF2-related schwannomatosis; NF registry; neurofibromatosis registry; NF1; schwannomatosis; NF2-related schwannomatosis; NF2-SWN; IAMRARE