Childhood Dementia Initiative

Rare Condition Umbrella Organisations
Works across the many rare genetic conditions that cause progressive cognitive decline in children. It brings families, clinicians and researchers together to advance awareness, research, diagnosis, care and support.
Illustration of three people beneath a heart, representing community and support.
Australia-wide
rare genetic conditions that cause childhood dementia; childhood dementia; childhood neurodegenerative conditions; Sanfilippo syndrome; Sanfilippo Children’s Foundation; Sanfilippo disease