Australian Neuromuscular Disease Registry

Research, registries & clinical trials
A national registry for people with participating neuromuscular conditions, including SMA, Duchenne muscular dystrophy, FSHD, myotonic dystrophy and several muscular dystrophies and myopathies. Registration supports research, care planning and trial readiness.
Illustration of three people beneath a heart, representing community and support.
Australia-wide
neuromuscular diseases covered by the national registry; ANMDR; neuromuscular registry; SMA; spinal muscular atrophy; Duchenne; DMD; FSHD; myotonic dystrophy; DM1; muscular dystrophy; myopathy