Australian Haemoglobinopathy Registry

Research, registries & clinical trials
A national clinical registry for people with sickle cell disease, beta thalassaemia major and other haemoglobinopathies. Participation is generally arranged through a treating service and supports research into care, outcomes and quality of life.
Illustration of three people beneath a heart, representing community and support.
Australia-wide
sickle cell disease, beta thalassaemia major and other haemoglobinopathies; haemoglobinopathy registry; hemoglobinopathy registry; sickle cell disease; thalassaemia; thalassemia