Genetic Alliance Australia has supported individuals, families and condition-specific organisations since 1988.
With the right partners beside us, we can extend practical support, strengthen community connection and respond to needs that might otherwise go unmet.
Every partnership is different. We welcome conversations about how your organisation’s funding, expertise, people or resources could contribute to GAA’s work and create meaningful community benefit.
Help expand practical support and connection for people living with rare, genetic and undiagnosed conditions.
Support the GAA Annual Forum, community events, trusted information, education, lived-experience co-design or more accessible participation.
Support our work through pro bono expertise, skills-based volunteering, workplace giving, employee fundraising or practical in-kind assistance.
Flexible and multi-year funding helps GAA sustain essential work, respond to emerging needs and invest in the people and systems required to deliver our services well.
When someone is living with a rare condition or still searching for answers, the right support at the right time can change their experience of what comes next.
Sometimes that means specialist guidance to make sense of complex information and navigate unclear pathways. Sometimes it means connection with someone who understands the journey through their own lived experience.
GAA is seeking partners to help more people access both: support to find their way and connection so they do not have to navigate it alone.
Living with an ultra-rare condition, or still searching for a diagnosis, can mean there is little reliable information available, no clear care pathway and no condition-specific organisation to turn to. People may be navigating multiple specialists, uncertain results and questions that affect not only their health, but also their family and future.
GAA’s Genetic Health Navigator is a free, one-to-one, community-based service delivered by a genetic counsellor. Their specialised training brings together genetics knowledge, skilled communication and an understanding of the personal and family impacts of genetic uncertainty, helping people make sense of the wider picture and navigate what comes next.
Demand for the service is greater than our current funded capacity. This means people may have to wait for support at a time when they are feeling uncertain, overwhelmed or unsure where to turn.
In its first 17 months, operating at only 0.2 FTE, the Genetic Health Navigator supported 181 people. Around 30% were undiagnosed, around 30% lived in rural or remote areas and approximately half had not previously accessed genetic counselling.
By helping to fund additional Navigator capacity, your organisation could directly help more people access personalised guidance and connection when they need it most.
Talk to us to learn more about how your partnership could help change the trajectory of someone’s rare or uncertain genetic health journey.
Living with a rare or undiagnosed condition can be deeply isolating. Even when surrounded by people who care, it can be difficult to find someone who understands the uncertainty, emotional impact and practical realities of the journey.
GAA already helps individuals, parents and carers connect with peers who have relevant lived experience. We know how meaningful the right connection can be, but this work is limited by capacity and does not currently have dedicated funding.
With the right partner, we could build on this foundation and create a more sustainable peer mentoring and support program, helping more people access understanding and connection when they need it most.
Talk to us to learn more about how your partnership could help change the trajectory of someone’s rare or undiagnosed journey.
We work with each partner to agree on a clear purpose, realistic outcomes and an approach that is appropriate for our community and your organisation.
Depending on the partnership, this may include:
GAA retains its independence in all partnership arrangements. Funding does not determine our advocacy priorities, policy positions or the information and support we provide.
Acceptance of support does not constitute endorsement of a company, product, service or treatment.
Tell us what your organisation would like to support or contribute, and we can explore whether there is a strong fit with GAA’s priorities and community needs.
