Genetic Alliance Australia is working with ENVISAGE to offer an ENVISAGE Families group specifically for parents and caregivers of children with rare, genetic or undiagnosed conditions.
The group will bring together parents and caregivers from the rare disease community to take part in the program together.
If you are interested in taking part, register your interest and we’ll let you know as soon as dates and further information are available.
ENVISAGE is a program co-created by Australian and Canadian researchers, clinicians, and most importantly parents of children with developmental concerns and disabilities. Their mission is to empower caregivers like you to feel confident and competent to navigate the experience of parenting a child or children with developmental concerns by embracing contemporary strengths-based ideas about health, wellbeing, and development.
