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Contact: Amyloidosis Network Australia
Website Click here
More info: State contact via links on web site: NSW, Victoria, Queensland and WA.
The AAN is an amalgamation of four Australian Amyloidosis multidisciplinary medical centres in Sydney, Melbourne, Brisbane and Perth.
The AAN is dedicated to the early recognition, accurate diagnosis and consensus-led management of all of the amyloid disorders. Its members have a long track record in the advocacy, management and academic study of the amyloidoses.
About: Amyloidosis is the name given to a group of rare disorders in which amyloid deposits, consisting of misfolded proteins which are relatively insoluble, deposit and accumulate in tissues and organs of the body. As these deposits progressively build up they interfere with the working of the organs. Without treatment this will eventually leads to organ failure.

Over the past 20 years there has been a greater understanding of these complicated diseases.

Although amyloidosis is still considered incurable, earlier diagnosis. improved technology for diagnosing and typing the diseases, new ways of assessing organ damage and the introduction of new treatments has resulted in many patients experiencing remission and leading busy, productive lives.

Much research is being carried around the world to develop new treatments for all types of amyloidosis.

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