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We haven’t identified a dedicated Australian support organisation for this condition. Our Genetic Health Navigator can help you find relevant information and support.
RARE Portal Australia
Australian rare disease information and resources.
Unique
Family-friendly information about rare chromosome and gene disorders.
It isn’t always easy to know where to start, particularly when a condition is very rare or there is no dedicated Australian organisation.
Last reviewed:
Information about rare and genetic conditions can change over time. GAA provides general information and links to trusted external sources. This information is not a substitute for advice from your healthcare team.
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