We help people find information, support and connection, and create opportunities for communities to share knowledge, collaborate and advocate for change.
We are especially committed to people whose conditions are so rare that no dedicated support group exists.
Finding information and support can sometimes be complex. Our Navigator offers information and support to help make sense of possible next steps, including when it is hard to know what to ask for.
Find condition-specific organisations, umbrella groups and services offering practical, emotional and other support, all in one directory.
Explore how GAA can support you and your community through peer supervision, information and resources, and opportunities to collaborate.
Finding information and support can sometimes be complex. Our Navigator offers information and support to help make sense of possible next steps, including when it is hard to know what to ask for.
Find condition-specific organisations, umbrella groups and services offering practical, emotional and other support, all in one directory.
Explore how GAA can support you and your community through peer supervision, information and resources, and opportunities to collaborate.
Make sense of what is being noticed, gather family health information and prepare to speak with a health professional →
Explore access to genetics services, preparing for appointments, understanding testing and finding support while waiting →
Understand a diagnosis, an uncertain result or no clear answer, and consider care, support and future review →
Explore support for everyday needs, wellbeing and finding people who understand, with or without a confirmed diagnosis.
Explore carrier screening, a known family condition, testing during pregnancy, unexpected news and support after loss.
Explore the emotional experiences that can come with rare, genetic and undiagnosed conditions, what may help and where to find support.
Explore support with or without a diagnosis, finding suitable professionals, explaining needs and navigating support at different ages.
Find help with healthcare and travel costs, work and income, caring responsibilities, everyday expenses and applications.
Explore groups and one-to-one connections, including when there is no exact diagnosis match, at a pace that feels right.
September
2026
GAA Annual Forum 2026, NSW Parliament House, Sydney
Explore genetic assessment and testing, preparing for appointments and finding support along the way.
Receive news, helpful resources, event invitations and opportunities to connect and contribute to the rare, genetic and undiagnosed community.
Interested in working together on an event, advocacy, research or a community idea? We would love to hear from you.
Help us continue providing information, support and connection for people and families living with rare, genetic and undiagnosed conditions.
