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Usher Syndrome

Usher Syndrome

Contact: UsherKids Australia
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More info: UsherKids Australia is a new network established to advocate for children diagnosed with Usher syndrome. They aim to improve the identification, education and support for children living with Usher syndrome in Australia.

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About: Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light sensitive area of tissue on the back of the eye (the retina).

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