Marinesco-Sjorgen Syndrome Support Group (USA) - http://www.marinesco-sjogren.org/
Rareconnect Group - https://www.rareconnect.org/en/community/marinesco-sjogren-syndrome
To facilitate support for those affected directly or indirectly by genetic conditions throughout Australasia.
Click on Bert, the Genetic Alliance Frog - to make a donation. All donations over $2 are tax deductible.
ABN 83 594 113 193 | ACN 168918625 | Registered Charity CFN 15481
C/- Garvan Institute of Medical Research
Level 6, 384 Victoria Street
Darlinghurst , NSW 2010
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