Genetic Alliance Australia, formerly Association of Genetic Support of Australasia (AGSA), a tax-deductible registered charity, was formed in 1988 to provide peer support and information for individuals and families affected by a rare genetic condition/rare disease.
GA Australia is proud to announce we now have QIP (Quality Innovation Performance) Accreditation in accordance with the requirements of the NSW Disability Services Standards.
The NGO Committee for Rare Diseases was launched on 11 November 2016 at the United Nations in New York. During this inaugural meeting, the Committee set forth its primary mission: to advocate for all people living with rare diseases worldwide. The NGO Committee gives equal consideration to the needs of all people living with a rare disease, irrespective of which rare disease they are affected by or where they live. Its Founding Act, presented at the end of the meeting, enshrines these essential values of humanism, patient-centricity and open exchange of knowledge and experience, which will guide and support all of the Committeeâ€™s future actions and endeavours. The program for the inaugural meeting featured presentations by leading advocates and policymakers from across the globe, with links to each.... Details
Genetic Alliance Australia invites you to an information session on genetics and support services. Topics for discussion: Genetics, NDIS Planning and fund management; siblings issues; accessing supports in the Tamworth area - and more! The forum is for families and providers of disability services in the Tamworth area of NSW. Lunch will be provided.
Patients, family members & healthcare professionals are welcome to attend this informative information session on Living with immunodeficiency: Strategies for daily living.... Details