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  • GENETIC COUNSELLING
    Want to know more about Genetic
    Counselling services in Australia?
  • GENOME SEQUENCING
    What do Australian Patients and Families think?
    Find out in our Report and Patient Charter
  • Providing peer support and information
    in the form of seminars, counselling, networking and more
    Connecting with others in the same boat
  • Connecting with others
    through GA's Contact Register of over 1500 rare genetic conditions
    View our A-Z list of genetic conditions
  • 6,000 identified rare diseases
    an estimated 350 million affected individuals worldwide
    ... a worldwide perspective

Genetic Conditions

An extensive list of A-Z list of genetic conditions and information.
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Support Services

More than 80 different support services connecting you with others.
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GA's Projects

Take a look at our latest projects supporting genetic conditons.
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About us

Genetic Alliance Australia, formerly Association of Genetic Support of Australasia (AGSA), a tax-deductible registered charity, was formed in 1988 to provide peer support and information for individuals and families affected by a rare genetic condition/rare disease.

GA Australia is proud to announce we now have QIP (Quality Innovation Performance) Accreditation in accordance with the requirements of the NSW Disability Services Standards.

Latest News

NGO Committee for Rare Diseases - Presentations

  • 18 October 2017

The NGO Committee for Rare Diseases was launched on 11 November 2016 at the United Nations in New York. During this inaugural meeting, the Committee set forth its primary mission: to advocate for all people living with rare diseases worldwide. The NGO Committee gives equal consideration to the needs of all people living with a rare disease, irrespective of which rare disease they are affected by or where they live. Its Founding Act, presented at the end of the meeting, enshrines these essential values of humanism, patient-centricity and open exchange of knowledge and experience, which will guide and support all of the Committee’s future actions and endeavours. The program for the inaugural meeting featured presentations by leading advocates and policymakers from across the globe, with links to each.... Details


Tamworth: Information session on genetics and support services

  • 28 October 2017: 10am to 3.30pm

Genetic Alliance Australia invites you to an information session on genetics and support services. Topics for discussion: Genetics, NDIS Planning and fund management; siblings issues; accessing supports in the Tamworth area - and more! The forum is for families and providers of disability services in the Tamworth area of NSW. Lunch will be provided.



... Details


#ID#and me Seminar - Living with immunodeficiency: Strategies for daily living

  • 21 October 2017

Patients, family members & healthcare professionals are welcome to attend this informative information session on Living with immunodeficiency: Strategies for daily living.... Details


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